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Everywhere always.

Julian in Times Square on August 24, 2022

Today is Julian’s 12th Angelversary. He’s now been gone three times longer than he was on the planet.

My memories of the earliest dark days 12 years ago are mercifully fuzzy, but I remember having two primary fears. First, that I would forget him. Second, that he would forget me. It didn’t take me long to realize how crazy my first concern was. But the second – would he forget me? – lingered longer.

I grew up in a loving Christian home, and was taught the concept of Heaven at an early age. As I grew older, I shed some of the aspects of religion that didn’t resonate with me, but I’ve always believed in the Heaven part. It always made sense to me that we are, in fact, “spiritual beings having a human experience.” And when this human experience is complete – when the Earth School lessons are learned – of course our souls would go back to where we came from.

Twelve years ago I wondered, what does that mean to my angel Julian? I knew his soul still existed even if his body didn’t… but would I feel his presence? Would I ever see evidence of his spirit in my life? Or might his soul have more important business to attend to?

Today, at the 12-year mark, I can answer that question. I now know it was as silly to worry about him forgetting me as me forgetting him. The answer is YES, I would feel his presence. YES I did, and do, literally see evidence of his spirit in my life.

My family and I get signs from him all the time. Sometimes, the signs are subtle. These signs show up in the little details of life, like finding what we call a “Julian spot” in a busy parking lot, or being assigned room number 312 (his birthday) in a hotel.

Oscar’s dime found shortly after the shooting at Michigan State University

Other times, the evidence of Julian’s energy seems almost magical. Like, the appearance of dimes. Literally, dimes. As in coins, but never pennies or nickels. We regularly receive dimes from Julian in places where they absolutely did not exist before. Dimes show up when we need a little a wave from our angel to let us know he’s with us. They show up at the best of times, and at the worst of times. Recently, Julian sent his brother Oscar a dime immediately after a terrifying mass shooting on Oscar’s college campus. When we need a little boost from beyond, he sends us a dime.

And then there are times when the signs are so ridiculously huge, it makes us laugh. Like a few months ago, when my husband and I were driving Oscar to begin his first year of college. Here we were, traveling across the country for this huge milestone… and at the exact same time, Julian’s face was smiling over Times Square. Yes of course there were humans involved — the Children’s Cancer Research Fund had contacted us months earlier to request our permission to include Julian in a fundraising project in New York City — but the timing of that was all Julian. His brother was literally on the road to college, and Julian made it clear that he was on this journey with us.

Twelve years ago, I worried that Julian might forget me. Today I know he never will. From parking spots to dimes to a billboard in Times Square, he is with me everywhere always.

 
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Posted by on March 3, 2023 in Angelversaries

 

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Today, we MOURN.

Today is Julian’s 11th Angelversary, and yet his death is quite low on the list of things I’m mourning today.

Today, one of my very best friends’ brother is taking his last breaths in an ICU. Yesterday, my dear cousin’s close friend died. A few months ago, another bff lost her brother in a freak farm accident.

And that’s just the mourning of death within my inner circle.

My inner circle of beloved friends also includes multiple people mourning heartbreaking fertility frustrations, scary health diagnoses, and significant concerns for their parents and/or children. And outside of my inner circle, Russia is still besieging Ukraine and Covid-19 continues to take lives.

Today, things feel very NOT OK.

Today, my Angelversary message is dedicated specifically to S, S, B, K, C, R, and C:
I am with you; we walk this journey together.

Today, we join hands and MOURN.

Tomorrow, or the next day, or some other day in the future… we will be OK.

But today, we MOURN. And that’s OK, too.

 
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Posted by on March 3, 2022 in Angelversaries

 

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This “being human” is a guest house.

"The Guest House" by Rumi

“The Guest House” by Rumi

Today is Julian‘s tenth Angelversary.
Ten years since his life ended way too soon.
Ten years of creating new normal.

Ten years ago, I couldn’t imagine living without my youngest son.
Yet, here I am.

Not because I’m “strong” or “brave.”
Not because I’m resilient.

It’s because I have no other option.

It’s also because, as the 13th-century Sufi mystic Rumi says, this “being human” is a guest house.

 

 


The Guest House

This being human is a guest house.
Every morning a new arrival.

A joy, a depression, a meanness,
some momentary awareness comes
As an unexpected visitor.

Welcome and entertain them all!
Even if they’re a crowd of sorrows,
who violently sweep your house
empty of its furniture,
still treat each guest honorably.
He may be clearing you out
for some new delight.

The dark thought, the shame, the malice,
meet them at the door laughing
and invite them in.

Be grateful for whoever comes,
because each has been sent
as a guide from beyond.

— Jalaluddin Rumi, translation by Coleman Barks (The Essential Rumi)

You can also listen to this poem in a song called “Arrival” by Hiatus, an Iranian ambient musician. (I had it on repeat as I wrote this post.)



The first time I heard this poem was when a dear family friend read it at Julian’s Celebration of Life, and it’s taken me this long to really appreciate the truth of it. Like a Cosmic Joke, it really is as simple as that. This “being human” is a guest house. Our experiences and emotions are our guests, sent as guides from beyond.

It’s natural to want to fight it. But, like it or not, our souls are here to learn from each “unexpected visitor” that arrives at our doorstep. We all have different visitors; we all have different soul journeys. 

Our souls didn’t sign up for an easy ride. We learn a lot through love and joy, but we learn MORE through loss and heartbreak. It’s the full spectrum of experiences — *especially* the negative ones — that provide the lessons that we most need to learn in this lifetime.

Rumi wrote The Guest House in the 13th century, when life expectancy was under 35, and child mortality might have been as high as 50%. The earliest audiences of this poem would have been intimately familiar with trauma and loss.

Today, thankfully, our human journeys are longer and healthier. And yet, the challenge is the same: we must be grateful for whatever crosses our path in this lifetime, because each experience has been sent as a guide from beyond. And each one is necessary for soul growth.

I will always have a Julian-sized hole in my heart. I will always mourn my family’s indescribable loss. But when I remind myself, “this being human is a guest house,” I feel a glimmer of peace. Even when those guests are “a crowd of sorrows / who violently sweep your house / empty of its furniture,” I do my best to treat them honorably.

Everything I experience in this lifetime has been sent to teach me the lessons my soul signed up for in the first place. On my best days, I meet them at the door of my guest house and respectfully invite them in. I welcome each one as a guide sent from beyond.

 

 
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Posted by on March 3, 2021 in Angelversaries

 

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Loss is Soulcraft.

Loss is Soulcraft.

Today is Julian’s 9th Angelversary. It’s also Super Tuesday here in the United States. I never imagined I’d be inspired by politics as I write a blog post about grief and loss, but here we are.

I didn’t consider myself “political” until just a few years ago. It is one of the many ways I’ve changed as a direct result of experiencing the loss of a child. My family and I really get it that life is too short to be complacent. Life is too short not to pay attention to the world around me. Life is too short not to fight for what I believe in. Sometimes, life is too short… period. 

So I get involved. I do my research, and I develop my opinions. I’m vocal about my opinions, and I participate in good-faith debates when I have the opportunity. I recognize that my voice MATTERS.

And even if things don’t go the way I hoped they would, at least I know I was in the arena. I fought the good fight. I made a DIFFERENCE.

It is no secret that I was, and still am, an enthusiastic supporter of Mayor Pete Buttigieg. When he announced he was suspending his 2020 presidential campaign on Sunday night, I was heartbroken. I watched his speech with tears in my eyes and a sob in my throat. I was particularly touched when he said:

“Politics at its worst is ugly. But at its best, politics can lift us up. It is not just policymaking. It is moral. It is soulcraft.”

I thought about that word, “soulcraft.” That, I believe, is why we’re here on the planet in the first place. To craft our soul. We are here for our soul to learn and grow.

And that doesn’t happen without loss.

So, whether we are suffering from the end of a political campaign or the end of a life, these losses shape our human experience. They make us who we are meant to be.

Loss is soulcraft.

I’m nine years into my journey as a bereaved mother. I wish I had been given a different path. I wish there was a different outline for me to follow in this Earth School of soulcraft. But I accept it. I appreciate every opportunity for my soul to learn and grow. I wouldn’t be who I am today if not for the glorious blessings AND the one devastating tragedy that my life has brought me so far.

So… to all the Super Tuesday winners and losers, to all the bereaved parents, to those who seek the fullest expression of life, and to everyone who goes ALL IN…

Congratulations on your successful soulcraft. 

 
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Posted by on March 3, 2020 in Angelversaries

 

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Keep Moving Forward.

Today is Julian’s eighth Angelversary. Ever since year one, my family gathers together on March 3rd to celebrate his life and the profound privilege it is for all of us to be alive. We focus on the family who is still here on the planet, and we are reminded never to take each other for granted. 

Today is also a day for personal reflection, as I review my progress over the past year. Now that I’ve completed eight years of The After, I can see my grief journey has gotten a little easier each year.

The first year was the worst, of course. The first birthday without him, the first time someone asked me how many children I have, the first vacation as a family of three… these firsts were impossible. After the firsts, each repeated instance became slightly less impossible. After almost eight years, I assumed all of my firsts were behind me.

Turns out, I was wrong. There was one really big first left to experience: the first time a friend called me, sobbing, “Oh Emily… Anna died yesterday.”

Sweet Anna. A kind, brave, curious 11-year-old girl I spent time with every summer for the past six years. She was more than just “a child I knew” or “my friends’ daughter.” We roasted marshmallows and had meaningful conversations together. I’m pretty sure I knew her better than I know my niece and nephews.

Anna was not a typical 11-year-old. She loved playing tennis, catching frogs, and the color purple. She identified as a liberal, and really understood what that meant. (How many 11YOs understand that? I don’t know any, besides Anna.) She had a motto, and repeated it often to her parents and friends. (How many 11YOs have a motto? I don’t know any, besides Anna.)

This special child was almost exactly the same age that Julian would have been. They never met each other, but they had a lot in common. They both had a twinkle in their eye, and a serious (but not terminal) health condition. They both had the best doctors who followed the best protocols at the best hospitals. And despite their diagnoses, they both were expected to live long healthy lives. But then… they didn’t.

Until that phone call, it didn’t occur to me to brace myself for the first death of a child, after my own. The first time I witnessed a friend take her first steps on the same path I’d been walking for more than seven years.

After I received that phone call, I sat at my kitchen counter and sobbed. Suddenly, my grief scab had been ripped off. I wept for Julian, I wept for Anna, I wept for Anna’s parents, and I wept for bereaved parents everywhere.

And then, after the initial shock wore off, I knew I had a decision to make: who would I be for my friend?

The easier choice would be to back away, become aloof, and tell my friend it was just too painful for me to go through this with her. The harder choice was to dive in to her experience with her, and to become the kind of guide and resource that I would have wanted in the days following Julian’s death.

I wish I could say it was an easy decision, but it wasn’t. I knew that choosing to move forward and travel this path with my friend would mean re-traveling the path myself. Was I up for that?

Ultimately, yes, of course I was. I took my friend by the hand, and we started walking the path.

We walked through the Dark Days, when nothing mattered and everything was a devastating blur. Somehow a zombie-like, latte-fueled version of ourselves was able to make cremation arrangements and decide how to celebrate our child’s life. We wondered, how can this possibly be real life?

We walked through the Evil-Inner-Critic Days, when we were attacked by that vicious voice in our head that told us our child’s death was definitely our fault, because we are the MOTHER and it is our JOB to protect our child from any and every danger, including dangers that came from within their own bodies. We were easily convinced when the voice told us, “a good mother wouldn’t WANT to survive the death of her child — how dare you try to move forward!” Our sad-grief turned into guilt-grief. We couldn’t stop that ruthless judge in our head, but we learned to recognize her. We named her Janice.

We walked through the Numbing Days, when we tried to replace our grief — and shut Janice up for a minute — with food or sleep or TV or sex or alcohol or whatever gave us the smallest whisper of pleasure in the middle of our black cloud of grief.

We walked through the Re-Entry Days, when we welcomed the return to our professional jobs, just so we could take a temporary break from grieving. We interacted with co-workers and baristas and all the random people we crossed paths with, never knowing when the next emotional breakdown would happen. We celebrated small wins, like having a day when we cried instead of sobbed.

Eventually, we arrived at the Creating-New-Normal Days, when we realized we will never have our old life again, but we can build a new one. We learned that this new life won’t be free from darkness, but there’s plenty of light if we’re willing to let it in. We accepted that we will probably never kill off our evil inner critic, but we’ve gained the strength to say “F off, Janice!” when necessary.

My friend and I are still walking that path, and we always will be. It’s not a path we chose, but it’s the path we’re on. And we’re walking it one step after the other.

We Keep Moving Forward.

Why? Because Anna told us to. She gave very specific instructions to everyone who knew her.

She wasn’t just a 11-year-old with a motto, she was a 11-year-old whose motto was “Keep Moving Forward” — KMF for short.

So that is what we do. We KMF. Day by day, step by step, my friend and I walk the path.

We Keep Moving Forward.

“It doesn’t matter how hard you can hit,
it matters how hard you can get hit,
and Keep Moving Forward.”
– Rocky Balboa

KMF 
💜

 
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Posted by on March 3, 2019 in Angelversaries

 

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Both are true.

Today is Julian’s seventh Angelversary. In the spirit of celebration and remembrance, I invite you to watch this video and take a moment to remember Julian and your own loved ones who have passed on to the Sky World:

Let’s put our minds together as one
And remember the ones who’ve passed on to the Sky World
Their life duties are complete
They are living peacefully
In the Sky World , In the Sky World.

This video moved me so deeply when I first saw it. If my heart took the form of song and dance today, this would be it. Because today is not a day for sadness and despair. Today is a day to celebrate the four short years we had with Julian, and to remember that he’s not “lost” — his life duties were complete, and he peacefully moved on to the Sky World.

Today is also a day for me to notice how my perspective on life (and death) has shifted in the past seven years. As my mind floats back to those early days, I remember talking to a woman who had lost a daughter many years earlier. She promised, “It may not get better, but it will get easier.” Initially, that seemed impossible.

When I was in the early stages of my grief, I couldn’t even imagine a life that would become easier… let alone better. Up to that point, I had spent my whole adult life working hard to create and control my life. Then, something profoundly tragic happened that was beyond my control — and no amount of hard work, good intentions, or desperate prayers could change that.

I realize now that I was not only grieving my son, I was grieving a total breakdown of my philosophy of life. But with time, I learned to surrender my need for control, and I released the belief that life was controllable in the first place. I stopped fighting the past, and eventually accepted the (unacceptable) present, including the aspects of the present that appear to be contradictory:

My son’s death was an unacceptable tragedy… AND I accept it. Both are true. 

I experienced the very worst thing a parent could experience… AND I have a lot to be grateful for. Both are true. 

I would do anything to bring him back… AND my family and I have had amazing experiences in the last seven years that were a direct result of Julian’s death. Both are true. 

My son died… AND there’s a lot to love about my life. Both are true. 

Today I am reminding myself, it did get easier. It got better, too. My heart is dancing and singing in remembrance of Julian. I am giving thanks for the love I feel and the lessons Julian continues to teach me, because he has passed on to the Sky World… AND he is with me forever. Both are true. 

 
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Posted by on March 3, 2018 in Angelversaries

 

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The motivation of death.

Justin-JohnsonBefore my son died, I had attended exactly four funerals: three were elderly grandparents, and one was a family friend who had fought a long battle with disease. Julian’s Celebration of Life was funeral number five. And last week, I attended funeral number six.

On August 13, 2014, a young father of four died in a car accident. His children attend my ten-year-old’s school, and our whole community was devastated. Almost immediately, a parent task force sprang into action to support the Johnson family.

Everyone was encouraged to attend the funeral, but my immediate response to that request was NO WAY. I told myself, everyone will understand. As if the death of my son excused me from supporting others in their grief.

What I didn’t anticipate is that my 10YO son absolutely, positively wanted to go to the funeral. “Are you sure?” I kept asking him. “It will probably bring up some painful memories for you,” I warned.

“Mom, I want to support my friends. They just lost their dad. And I know what it feels like to lose someone you love so much,” he said. Of course my son would have this perspective. For him, his own potential for pain was irrelevant compared to the potential to help others.

Still, the voice in my head said, I’m just not ready. But then, I realized the meaninglessness of that thought. Is anyone ever really “ready” to attend a funeral? No. Definitely not. So last Thursday, my son and I entered the packed church to support the Johnson family — and stare death in the face for the first time in three and a half years.

There were some painful moments, for sure. I remembered what it felt like to sit in that front row. I imagined the journey that the members of the Johnson family are just beginning. I wondered how I had forgotten to put tissues in my purse.

But more importantly, I marveled at the strength of the human spirit. We experience profound pain, and then… life goes on. Most of us, at our core, are resilient. Life is not supposed to be easy. In fact, I believe, it is supposed to be hard. This is Earth School, after all. Our souls are here to learn.

The funeral experience last Thursday — the opportunity to stare death in the face again — reminded me of the central theme of this blog that I started more than three years ago: When we are faced with tragedy, what do we choose to do? Do we shut down, close up, turn off? Or do we live bigger, love harder, create more?

In a beautiful short film called Existential Bummer, filmmaker Jason Silva observes that sometimes love makes us simultaneously happy *and* melancholy, nostalgic for what we have yet to lose. I think the same concept is reversely true of death: it can make us sad *and* inspired, motivated to maximize our life:

(apologies in advance for the advertisement you might see before the film starts)

Death challenges us, reminding us that entropy is inevitable. Death asks, what will you do NOW? I, for one, agree with Jason Silva when he suggests that we must use entropy to motivate us to extend every moment forever (or at least try):

“Perhaps the biggest existential bummer of all is entropy…. Sometimes I feel nostalgic over something I haven’t lost yet, because I see its transience.

And so how does one respond to this? Do we love harder? Do we squeeze tighter? Or do we embrace to the Buddhist creed of no attachment? Do we pretend not to care that everything and everyone we know is going to be take away from us?

I don’t know if I can accept that. I think I more side with the Dylan Thomas quote that says, ‘I will not go quietly into that good night, but instead rage against the dying of the light.’

I think that we defy entropy and impermanence with our films and our poems. I think we hold onto each other a little harder and say, ‘I will NOT let go. I do NOT accept the ephemeral nature of this moment. I’m going to extend it forever… or at least I’m going to try.'”

It is impossible to avoid tragedy in our lives. No amount of precaution, protection, or prayer will stop death from coming for us and our loved ones when our time is up. But until then, we can make a choice to attend that funeral, to feel that pain, to see the entropy all around us… and be MOTIVATED by it. 

That is my wish for myself, for the Johnson family, and for all humankind studying bravely in this Earth School.

 
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Posted by on August 24, 2014 in year 4

 

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Angel Day #3: The 3rd 3/3

Today is Julian’s Angel Day. The third one. The 3rd 3/3. And he was 3 when he died. Lots of threes today.

I recently read Louise Hay’s latest book, You Can Heal Your Heart. I highlighted several quotes throughout the book, but the one that struck me most is this:

_______________

“The person you were has forever changed. A part of the old you died with your loved one, but a part of your loved one lives on in the new you. This can be a holy transition instead of a lose-lose frame of mind.”

_______________

So in honor of this day of 3, I’d like to share three insights from the “holy transition” I’ve been living through these past three years:

______________________________________________________________

1. I leaned in. And then I leaned back. And now I fly above. 

I’ve always been a driven person. Goal-setting was automatic; there was always a destination I was striving for. I was “leaning in” way before Sheryl Sandberg told us to. When I was 28, I founded a successful business that grew to support more than 10 families. I served on boards, and I was recognized as a “pioneer” and a “leader” in my field. But eventually I was just on frantic auto-pilot, working nights and weekends for years and years to maintain the leaned-in life I’d created for myself.

The first year after Julian’s death, I appreciated that auto-pilot life. The quantity and intensity of activity in my life was a welcome distraction. But by the time Julian’s first Angelversary came around, I realized I was completely burned out. I cracked. I just couldn’t do it anymore. But I didn’t know what I wanted to do instead — and I couldn’t do nothing — so I leaned BACK. I stayed in my business, but I redefined my job description and I cut back on anything I could cut back on.

Then, when Julian’s second Angelversary came around, I realized that leaning back wasn’t any better. Instead of achieving more “balance,” I’d gone from frantic auto-pilot to bored robot. I was going through the motions, without authentic passion for any of the things that used to excite me. So I made the scariest decision of my life: I decided to transition out of my business. I had some ideas for what I wanted to do next, but I didn’t have an exact plan. I wasn’t even comfortable calling it a “sabbatical,” because I didn’t know if I’d ever want to return to the work I’d done before. I took a running leap into the unknown — no specific goal, no specific destination. I wasn’t leaning in or leaning back. I was flying above.

And here I am today, three years after Julian died, feeling alive for the first time in forever. What am I doing now? For one thing, I’m writing a book. But more importantly, I’m pursuing what Danielle LaPorte calls “goals with soul.” Instead of traditional goals, I’m driven by my core desired feelings: Freedom, Creativity, and Abundance. And when I re-focused on what I really valued, I found that spark again. I was struck by divine inspiration (thank you, Julian!) for a NEW business that will merge my past career in website design with my newly discovered passion for spiritual technology. (More on that later. I gotta get that book done first!)

I leaned in, then I leaned back, and now I fly above. I’m more “me” than I’ve ever been, and it’s because a part of Julian lives on in the new me. And I thank him for that every day.

______________________________________________________________

2. I’ve examined my “primal thinking” about relationships.

Another one of my favorite quotes from You Can Heal Your Heart is, “Grief is the window that provides the opportunity to examine your primal thinking about relationships.” As I think back on the past three years, I see how profoundly true that is.

I learned two things about relationships shortly after Julian died. First, I was told that I’d be surprised by who supported me in those darkest days (I’d be surprised by who came forward, and I’d be surprised by who retreated). And yes, that was true for me. But what surprised me even more was how my friendships continued to change as the years went by. Friends who were once close drifted away, and people who entered my life after Julian died are now some of my best friends and biggest supporters. I treasure these new soul sisters, and I thank Julian for bringing them into my life.

The second thing I was told about relationships is that the loss of a child often ends in divorce. A child’s death can directly lead to divorce, like when one parent was fully or partially responsible for the death. Or the child’s death can indirectly lead to divorce, like when a spouse’s physical characteristics bring up memories of the child that are too painful to live with on a day-to-day basis, or when the parents fail to soothe each other and feel they must part ways to find joy again.

I’m happy to report that my marriage did not suffer either of these scenarios. When I look back on the past three years, it’s clear to me that Julian’s death brought my husband and me even closer. He’s had his own journey of grief and recovery, and he’s come out the other side with strength and determination. Together, we experienced the very worst thing that any parents can experience, and we learned that we can survive anything… because we have each other.

My “primal thinking about relationships” has shifted a lot in the past three years, and I’m grateful for it. I’ve made beautiful new friendships, and I’ve gained even more strength in my marriage. Julian inspires me to appreciate every relationship I have.

______________________________________________________________

3. I’ve learned the Truth: love never dies.

Before Julian died, I described myself as “spiritual but not religious.” I still describe myself that way, but now I really understand what that means. I’ve found myself drawn to books like Proof of Heaven and Many Lives, Many Masters. I know in my heart that Julian and I have been together before, and we’ll be together again. But also, WE’RE STILL TOGETHER NOW.

Louise Hay says, “The ultimate truth is that love never dies.” I’m here to tell you, that’s true. And I don’t mean conceptually or abstractly true. I mean, literally capital-T True. Julian is no longer in human form, but he is not gone. He is present in my life every day. In large and small ways, he gives me signs that he is with me. Like for example, last year my whole family was celebrating Julian’s birthday and our server introduced himself to us. His name was JULIAN. That wasn’t a coincidence. That was Julian saying, “Hi! Thanks for celebrating my birthday! I’m here, too!”

Our loved ones’ bodies die, but their love never dies. Their souls live on, and connect with us ALL THE TIME. If you pay attention, you will see it, too.

So there you go. A trinity of transition. Three ways Julian has become a part of the new me. He blessed me in life, and he blesses me still. 

Happy third Angelversary, little one.

 
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Posted by on March 3, 2014 in Angelversaries, year 3

 

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The difference between empathy and sympathy.

The difference between empathy and sympathy.

I never thought much about the difference between empathy and sympathy until my life took a turn and suddenly I received an abundance of both. 

When Julian was diagnosed with leukemia, most people in my life wanted to show me they cared, and they wanted to help — but they didn’t really know what to do or say. When he died two weeks later, they really didn’t know what to do or say. And I didn’t blame them. I wouldn’t have know what to say to me, either.

Earlier this year I read a book that profoundly changed how I understand empathy and sympathy, as well as vulnerability and shame. (And trust me, after losing a child, one becomes intimate with all of the above.) The book is called Daring Greatly: How the Courage to Be Vulnerable Transforms the Way We Live, Love, Parent, and Lead by Brené Brown.

As much as I loved the book, it soon became just another good literary memory as I moved on to read other great books. Then yesterday, the author posted an animated video that so beautifully captures her core message about the power of empathy. The video reminded me of how much I loved that book, and I just have to share it:

My own “hole” was about as deep and dark as they come. Very few people felt they could climb down that ladder, even if they wanted to. What I didn’t quite recognize at the time is what Brené Brown shares from her research: empathy is a vulnerable choice. Empathy is risky and painful; sympathy is not.

For someone to be empathetic with me, they need to get in touch with their own pain. They either authentically revisit  a time when they experienced profound loss, or they allow themselves to really feel the pain they imagine they would feel if they were me. (The latter approach is less effective, but appreciated.)

Sympathizers, on the other hand, may have good intentions but maintain a separation from me and often say the wrong thing. I can’t tell you how many times I’ve shared about Julian, and the first thing someone asks is, “Do you have any other children?” The look of relief on their face when I say yes is equivalent to the “at least” insight from the video. At least he wasn’t your only child. I’m grateful for my older son, but nope. Not helpful.

My favorite quote from the video is right at the end: “The truth is, rarely can a response make something better. What makes something better is connection.” After Julian died, many people wanted to be able to say something to make it better. But nothing could bring Julian back. What I needed was something to help bring ME back. That something was connection.

Thanks to my personal connections combined with the grief journey I’ve described on this blog, I now feel more connected to the Universe and other people than I ever did before. And maybe that’s why the Brené Brown video struck me so deeply: I now know, without a doubt, that connections are what keep us afloat and alive. Without authentic connections with others, we could so easily be eternally lost in our dark hole.

So if there’s someone in your life who is struggling, be thoughtful about whether you are responding with empathy or with sympathy. Remember that the need for empathy isn’t limited to extremes like cancer and death — there are people in our lives who need and deserve our empathy for minor things, too.

Also, if someone in your life is struggling with something as traumatic as cancer or death, don’t try to convince yourself that you’re unable to be empathetic because you haven’t experienced the exact same thing. As I’ve written about before, pain is pain. If you are human, you’ve felt pain. And if you’ve felt pain, you have the ability to show empathy. You just have to be brave enough to be vulnerable.

You don’t need to be a bereaved parent to understand what it means to experience traumatic loss. I don’t need you to tell me, “I know how you feel because I’ve also lost a child.” I just need you to tell me, “You’re not alone, I’m here, I’ve also experienced pain.”

Because ultimately, Brené Brown says, the most important two words for connection are, “Me, too.”

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Learn more about Brené Brown:

 
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Posted by on December 11, 2013 in year 3

 

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Second Firsts: the book I was looking for.

reading-with-flashlightI’ve always loved to read. When I was young, I’d read with a flashlight long after I was supposed to go to bed. Books — both fiction and non — have always been my go-to source of information, entertainment, and escape. So when my son Julian died, I instinctually gravitated toward books to help me take those first steps on my grief journey. Books had always helped me in the past, and I expected them to help me again. So I spent hours searching for, skimming, and attempting to read countless grief books… but ultimately they made me feel worse instead of better.

Books written by bereaved people typically followed the same formula: “I had a beautiful life, and then my child/spouse died, and then life was horrible, and then I wrote a book.” Books written by therapists were even more discouraging, because their work was based on chronic grievers who, by definition, were less resilient than the average person.

Eventually, I found a science-based book (which I wrote about in a previous blog post) that gave me hope — but at the time I was most desperate for help from books, the memoirs and self-help books that monopolized the “grief” category on Amazon were depressing and disappointing. My intuition told me that I could find joy again, but no one was talking about joy after loss. 

That was over two years ago. And thankfully, I’ve been able to find other ways to learn, grow, and move through my grief. In fact, I’ve started to write a book about my process and my own journey. In other words, I’m writing the book I wish I found when Julian died.

second firsts coverBecause I’m writing a book about life after loss, I like to keep tabs on what’s happening in the publishing world. So a few weeks ago, I read a newsletter from the publisher Hay House, and I learned about Second Firsts by Christina Rasmussen. When I read the description of this new book, my first reaction was embarrassingly selfish. “That’s the book *I* was going to write!” shouted my ego. This new book, to my simultaneous dismay and excitement, was described exactly as the book I was just beginning to write — the book I was so desperately seeking two years ago. This book teaches people how to “live, laugh, and love again” after loss.

Thankfully, my ego-based first reaction was quickly replaced by my heart’s appreciation for the message that Ms. Rasmussen (whose husband died of cancer at the age of 35) brings to the world via this book. FINALLY, someone has given a voice to those of us who instinctually choose happiness despite tragedy in our lives. And, better yet, offers actionable advice to those of us who continue to struggle.

There are many things I love about this book, and several of her themes are consistent with things I’ve written about on this blog. For example:

  • MEMOIRS
    She, too, was less-than-satisfied by the grief memoirs:

“I read many memoirs written by people who had gone through a tragedy, and these authors placed so much emphasis on their losses that the idea of truly living life after loss, while in the midst of grieving, was never really addressed” (pg 16)

  • REINVENTION
    She encourages her readers to not just “heal” but create a new life (a “new normal”):

“…healing from grief isn’t just about putting your life back together; it’s about creating a new life that makes you happy…. We can even create a life that is more amazing than the one we were previously living.” (pg 24)

  • SELF-DISCOVERY
    She motivates her readers to discover who we are, despite our grief:

“Above all, you have to be adventurous despite your grief, if you want to find out who you truly are and what you are made of.” (pg 32)

  • OTHERS’ EXPECTATIONS
    She acknowledges the challenge of attempting to move forward in a culture that has certain expectations of grief:

“Keep in mind that it’s natural to want to dismiss the return journey from the world of grief. It goes against what we’re being told by the environment around us, which is that we are injured and need to stop, hide, and rest until the pain goes away.” (pg 67)

  • PARTNERSHIP OF LIFE + GRIEF
    She encourages us not to assume that joy and grief are mutually exclusive, and she reminds us of the consequences of not finding a way for life and grief to coexist:

“The longer we have been grieving a loss, the harder it is to start living again. This is one of the reasons why I wholeheartedly believe we must invite life and grief to walk hand in hand. If life doesn’t escort grief back to joy, then it takes us much longer to get there, if we ever do.” (pg 69)

  • BRAIN SCIENCE
    She studied brain science, and learned how the brain is the key to a joyful new life:

“There is a different identity waiting to be revealed. A real evolution takes place in the brain during the days, months, or years following a loss — and it holds exciting possibilities. It can lead to an extraordinarily happy, productive, and fulfilling new life.” (pg 98)

  • THE CHOICE OF HAPPINESS
    She confirms that happiness is a choice that is available to all of us, no matter what we may have endured in the past:

“This discovery that happiness is a choice we must repeatedly make, day in and day out, rather than an event-based experience, set me free from my attachment to loss and enabled me to shift my focus toward living my life. Once I saw this truth, I chose to be happy again.” (pg 100)

The book Second Firsts was meaningful to me because not only does it provide helpful insights into what I’ve experienced in the past, it also makes me very excited for the “grief industry” as a whole. The first printing of the book sold out in record time and was recently re-published, and currently has an average rating of 5 out of 5 stars on Amazon. This shows me that the world is hungry for this message. People are tired of living in the past, and for perhaps the first time, there is evidence that we can thrive after loss.

I’m still working on my own version of the book I was seeking two years ago. But in the meantime, the world is a better place because Christina Rasmussen’s book is in it. And with any luck, someday Amazon will tell you, “If you liked Second Firsts, you might like Emily Eaton’s book!”

 
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Posted by on November 12, 2013 in year 3

 

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